tag:blogger.com,1999:blog-4631485974950872263.post2423299026303493332..comments2017-09-18T19:53:13.097-05:00Comments on Sweet Kinsley Girl: An Update on our DaughterCarolinehttp://www.blogger.com/profile/06814472759057652109noreply@blogger.comBlogger43125tag:blogger.com,1999:blog-4631485974950872263.post-83657351647262110802014-11-07T11:57:00.575-06:002014-11-07T11:57:00.575-06:00Thank you so much ! :) this means a lot to me ! :)...Thank you so much ! :) this means a lot to me ! :) Anonymoushttps://www.blogger.com/profile/09334159269442769920noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-78292196375296806812014-11-07T11:28:25.272-06:002014-11-07T11:28:25.272-06:00Of course! In an attempt to save it from being eas...Of course! In an attempt to save it from being easily found by spamers, I will just say it's my first name and then dockery @ gmail . com. I hope that makes sense. Let me know if it doesn't work. Thanks!Carolinehttps://www.blogger.com/profile/06814472759057652109noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-16349674847507837212014-11-07T10:27:59.796-06:002014-11-07T10:27:59.796-06:00Ok! Nice to know about the group ! Thank you ! :) ...Ok! Nice to know about the group ! Thank you ! :) <br />Could i have your email addres ? I think my sister would like to be in contact with you ! :) Anonymoushttps://www.blogger.com/profile/09334159269442769920noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-75403413857100585582014-11-06T17:32:16.243-06:002014-11-06T17:32:16.243-06:00Hello, Mari. I'm so glad you found the blog to...Hello, Mari. I'm so glad you found the blog too. I started it partially in hopes it would help others looking for more insight into MEB. I hope it's helpful to you. <br />There is also a Facebook group called Walker Warburg Syndrome that has a lot of MEB families on it too. You may be interested in joining it if you would like to "meet" other families. <br />I would love to hear more about your niece. I will be praying for her and your family too. Carolinehttps://www.blogger.com/profile/06814472759057652109noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-21797771257084662982014-11-06T13:45:04.548-06:002014-11-06T13:45:04.548-06:00Hi ! :) my name is Mari, and i'm from Finland....Hi ! :) my name is Mari, and i'm from Finland. My sisters daughter has received a diagnosis of MEB. I'm so happy that i found your blog ! Best wishes for Kinsley ! :) Anonymoushttps://www.blogger.com/profile/09334159269442769920noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-89670468521271591022013-01-27T07:55:43.093-06:002013-01-27T07:55:43.093-06:00Hello Caroline, I just came across your blog, and ...Hello Caroline, I just came across your blog, and want you to know that your message fills me with hope and faith. What an example you and your husband are to all of us who don't have children yet, or are expecting soon (like me). Thank you for reminding me that nothing is a guarantee except that God wants us to prosper. He chose you two to raise Kinsley because He knew the three of your needed each other. I'll be following your blog, and keeping Kinsley in my prayers. Thanks again.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-5540435931141593222013-01-09T08:05:19.970-06:002013-01-09T08:05:19.970-06:00Caroline, I have never met you but do know your sw...Caroline, I have never met you but do know your sweet Mom. I met her through WW and have developed a bond with her. She shared this link with me as I have been praying for your family and wanted to be kept updated. I am so very encouraged for Kinsley, our God is an awesome God!! He is working so much beauty thru this, it is evident in your blog. I will keep Kinsley and you parents in my prayers.<br />Cheryl Erdner in Huntsville, AL<br />Cerdnerhttps://www.blogger.com/profile/00509746349557782818noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-83819876105728315872013-01-05T21:52:15.649-06:002013-01-05T21:52:15.649-06:00Caroline and Luke,
Just recently saw a link to yo...Caroline and Luke, <br />Just recently saw a link to your blog and sat down to read it tonight. My heart was aching as I was reading your words Caroline, but your positive attitude and clear hope and pride for your daughter shine through what you've written. Kinsley is blessed by two God-fearing parents who are fighting for her.<br />Some of your words struck such a deep cord with me and the verse you wrote out from Jeremiah is one that I cling to daily.<br />I want you to know that I am praying with and for you guys.<br />Kinsley is such a special little girl and I know the Lord has big plans for her life! Hoping to follow her journey here as she makes milestones and sets new "limits" for herself! <br />Please let us know if we can do anything or pray more specifically about something!<br />Love you guys, <br />Kelli and Daniel<br />Kelli Whitehttps://www.blogger.com/profile/10228967086974062692noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-996703743456968332013-01-01T00:36:49.948-06:002013-01-01T00:36:49.948-06:00Praying for Kinsley (and her mommy and daddy)! Yo...Praying for Kinsley (and her mommy and daddy)! You faith continues to be an inspiration. Thank you for being transparent in your journey, which is probably not easy. Please let me know if I can every do anything to help you all!<br />Love,<br />ReginaAnonymoushttps://www.blogger.com/profile/10204404781635112137noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-53689227912147101042012-12-22T22:02:26.352-06:002012-12-22T22:02:26.352-06:00Caroline and Luke, We are praying for little Kinsl...Caroline and Luke, We are praying for little Kinsley. She is such a lucky little girl to have such loving Parents and absolutely wonderful Grandparents. We will keep positive thoughts. Thank you for posting this blog and keeping us posted on her progress. Love to you all...Joe and Marianne Kilkennymarianne.kilkennyhttps://www.blogger.com/profile/01981453073394680416noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-59765217148360510902012-12-22T08:20:31.021-06:002012-12-22T08:20:31.021-06:00What a blessing this blog will be to others who ma...What a blessing this blog will be to others who may deal with similar issues. I'll tell you what, that Kinsley is PRECIOUS. What a lucky lucky girl to have parents like you.Larissa Hollandhttps://www.blogger.com/profile/03901400647777521741noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-31206341876084772102012-12-21T14:48:10.140-06:002012-12-21T14:48:10.140-06:00Luke and Caroline, what a blessing you have been t...Luke and Caroline, what a blessing you have been to our congregation. Kinsley is so sweet and beautiful, she is a true gift from God. I pray for the things you requested in this posting and I also pray for you and Luke. May God give you strength and courage for the road ahead, and may He bless Kinsley with continual progress. I love you guys!<br />MarionAnonymoushttps://www.blogger.com/profile/06026977439492495663noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-49493178186185184272012-12-20T12:16:55.065-06:002012-12-20T12:16:55.065-06:00Hi Caroline and Luke, this is Aunt BA. I can’t ima...Hi Caroline and Luke, this is Aunt BA. I can’t imagine that Kinsley could have two better parents to raise her and to help her reach her full potential, considering the challenges she is facing. She is indeed a beautiful, sweet girl, and it is so encouraging to hear of all the progress she is making. I think you are so wise in not setting limits on what she can do, while being realistic at the same time. You are all constantly in my thoughts and I look forward to seeing you all in a few days. I have shared your blog with several of my close friends and they are all praying for your family and hoping for the best regarding the diagnosis. One friend posted as bs7928, just so you know where that came from. If Kinsley does indeed have one of those syndromes, we hope it will be on the mild side of the spectrum. No matter what, she will be a loved and cherished child, who has already brought much joy into the world. Love, Aunt BAAnonymoushttps://www.blogger.com/profile/03143156463582326805noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-29475498910036796282012-12-19T10:59:02.708-06:002012-12-19T10:59:02.708-06:00You have a beautiful daughter. Her sweet smile wo...You have a beautiful daughter. Her sweet smile would warm any heart. I am thankful that Kinsley has such loving parents which allowed her condition to be detected so early. I pray that Kinsley will continue to develop and grow stronger everyday. I pray that you and your husband find strength you need. Kinsley is blessed to have you has parents. bs7928https://www.blogger.com/profile/12782163108552919532noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-78170268318246394192012-12-19T10:35:34.113-06:002012-12-19T10:35:34.113-06:00Dear Caroline, I just heard about your sweet Kinsl...Dear Caroline, I just heard about your sweet Kinsley. On every Friday your family is in my prayer but from today you, Luke and Kinsley, I will have you every day in my prayer.<br />Jesus is close to us in every situation, even when we have a sensation that he is not there. No, he is there with us, and I know that you know this. <br />Your faith and your love for the beautiful Kinsley is the blessing that will make everything fine.<br />Give a kiss to Kinsley from me, her Italian uncle.<br />Love you guys and hope to meet you.<br /><br />LinoAnonymoushttps://www.blogger.com/profile/07119330609569665404noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-77622540858710242582012-12-18T07:16:27.490-06:002012-12-18T07:16:27.490-06:00I want to thank each of you for your kind comments...I want to thank each of you for your kind comments and especially your prayers. We know how much prayer helps!Carolinehttps://www.blogger.com/profile/06814472759057652109noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-61485297937567637072012-12-17T20:29:03.476-06:002012-12-17T20:29:03.476-06:00Caroline, my heart aches for you all. I can't ...Caroline, my heart aches for you all. I can't imagine the waiting game that you're going through right now. But you're right, no limits! Even when you get definite results, no two people are the same and you both have the right attitude that you will continue to find ways to help your beautiful daughter progress in any way that she can. She is a gift and God chose the right couple to give her to. You're all in my prayers. I'm so glad you have a wonderful family that you can lean on during these uncertain times. Hang in there sweet Caroline!Anonymoushttps://www.blogger.com/profile/01739229519647235548noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-23943238462068780132012-12-17T20:03:23.600-06:002012-12-17T20:03:23.600-06:00We are praying for you, Luke and sweet Kinsley! Sh...We are praying for you, Luke and sweet Kinsley! She is a beautiful baby girl and has the sweetest smile! We will keep praying for you all! We are here if you need anything at all! <br />Tasha and JakeAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-70745924588776392362012-12-17T19:40:09.044-06:002012-12-17T19:40:09.044-06:00Caroline, sweet prayers for your precious Kinsley,...Caroline, sweet prayers for your precious Kinsley, you and Luke. Kinsley could not have two better people to love her than you two. We will continuously lift y'all up in prayers. Thank you for sharing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-13676459426866192962012-12-17T19:27:15.383-06:002012-12-17T19:27:15.383-06:00Caroline, thank you for your example of faith. Sh...Caroline, thank you for your example of faith. She is a special girl with a very special mom! (and I'm sure dad, too). I will be praying for your family as you go through the joys and trials this parenting experience may bring. Also, my family lives about 20 mins from AR Children's, so please let me know if you are ever in the area and need anything! Thanks for sharing your heart!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-51287933941717232052012-12-17T18:15:46.133-06:002012-12-17T18:15:46.133-06:00Caroline, thank you for sharing this journey you a...Caroline, thank you for sharing this journey you and Luke have had and for sharing a sliver of the emotions and anxiety you've experienced. Your faith is inspiring. And, yes, Nancy and I will continue to pray and we will continue to read your blog. God bless.Anonymoushttps://www.blogger.com/profile/17954120886323558232noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-13439900016044465102012-12-17T18:10:35.367-06:002012-12-17T18:10:35.367-06:00Toni,
Nice to "meet" you! Thank you for ...Toni,<br />Nice to "meet" you! Thank you for sharing the words your friend shared with you. I know how true they are and I am thankful for that. Right now we are still struggling through the grieving, but working towards the joy in having Kinsley for who she is. We appreciate all prayers and well wishes through this process. Thanks, again.Carolinehttps://www.blogger.com/profile/06814472759057652109noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-58894351200735511342012-12-17T18:04:34.734-06:002012-12-17T18:04:34.734-06:00Thank you so very much for your sweet words and en...Thank you so very much for your sweet words and encouragement. We are looking forward to working with you and Donna as well and we are sure you will both be a blessing to us and our congregation.Carolinehttps://www.blogger.com/profile/06814472759057652109noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-68825600356128159102012-12-17T18:02:17.886-06:002012-12-17T18:02:17.886-06:00Thank you very much, Teresa. We have been reaching...Thank you very much, Teresa. We have been reaching out to other parents with children with the same syndromes. It has been a great help as many of them know more about these syndromes than most doctors do and often how much more encouraging information.<br />And, aha! So you are the mystery person Jared was telling me he met. He said he met a lady I knew in Italy, but he couldn't remember your name. Small world! Glad you got to attend his class. I find him to be quite knowledgeable when I hear him speak.<br />Again, thanks for the prayers and please keep us in them. <br />Love, CarolineCarolinehttps://www.blogger.com/profile/06814472759057652109noreply@blogger.comtag:blogger.com,1999:blog-4631485974950872263.post-6912088804095092632012-12-17T17:15:22.960-06:002012-12-17T17:15:22.960-06:00Oh, Caroline! Your family is in our prayers. It...Oh, Caroline! Your family is in our prayers. It's wonderful to be able to stay connected to people you live so far away from. Please keep the blog updated on her progress. We're praying!GREG AND JANICEhttps://www.blogger.com/profile/11872744839260194740noreply@blogger.com